Tuesday, October 19, 2010

Savannah's Illness

This has been a real long year, well it will be actually a year in December that Savannah our 9 year old, 8 at the time has started getting sick. Violently ill, vomiting every ounce of fluid that would go in her mouth. Right lower stomach pain that has her curled up in a fetal position. She will just rock back and forth and cry from being in so much pain. These (episodes as the dr.s call them) happen about every 5-6 weeks and she is down for at least 4 days. It affects her school, sports, church basically it affects everything that she does when this happens. Visit after visit with all type of doctor's at the clinics, ER, and Speciality docs at Children's in Spokane all they can come up with is a new diagnosis of a "Abdominal Migraines". I was like...what??? He asked for my history of migraines and that goes way back. I have suffered from migraines from the time I was a little girl, my dad and my oldest sister also suffers from them as well. So after asking more questions and after so many tests ( I can't even remember all of them). That's what they say "Abdominal Migraines". If just sounds so weird to have a diagnosis like that. One doctor told me that it can happen because when she was still developing in my stomach that her nerves got crossed from her head to abdomen. I don't know what to think of all that. But what I do know is that all the different meds they have given her to stop her from vomiting so fiercely......none of them work. There is even meds that they give to kids with cancer to help them through chemo. That doesn't even touch her......every 5-10 mins she gets up out of our bed and hobbles over to the bathroom. She can't/won't eat for 3 days at least, she can't stand up straight because of all the pain she is in, she has the darkest black circles around both of her eyes and every sip of water or meds that go in come straight back up. Well this was been my last few days. I cry with her because I can't take her pain away and as a parent that's what we are suppose to do. The one thing we did differently was she didn't go to the ER this time. I was really trying to take care of her here at home. She has been poked with iv's more then any baby/child should have to. When she tells me that I don't need to hold her had anymore for her and that she is ok. She has had one to many!! So I call her specialist office first thing Monday morning and guess what?? He's not in the office, his nurse proceeds to tell me to call her primary doctor to make sure she doesn't have the "flu", you know how many times I have heard that from the medical field....."Oh the flu is going around that's probably all it is" and like I have said many times back to them...."if it was the flu then all 7 of us at home would have it and if she keeps getting sick from it then look at her immune system people!" So then I call her primary cares office and guess what there?? Her last freaking day was last Friday!! Do you think she could have sent out a note stating she was leaving or something. I have worked for over 7 years in the medical field and I know there is something the office could do. So now they want to send her to another doctor and basically start all over again. I am more then frustrated. I hurt for my child, I am the one person besides daddy to make her feel better and to get her help and when we try I feel I fail her. So this last weekend after the great trip to the pumpkin patch she came down with it all over again. I just laid with her in our bed for hours and prayed for her until I was so exhausted and fell asleep. In times of struggles, I believe that my Lord will not put more on me then he knows I can handle but shoot I just wish he didn't trust me so much!!!!And I do realize that with our situation things could be so much worse and that there is a lot worse off out there. I truly get that and we are all so lucky and feel blessed with what we have and what we have been given. I just pray that I could take her severe pain away. Please Lord hear my prayers~Amen.

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